Sunday, July 8, 2012

June 28, 2012

Thursday, June 28, 2012
 
Hi Friends:
 
It has been a very long time since I have given you an update on what has been happening on the health front.  First I want to say, that I do not presume to be important enough that I warrant any kind of attention sent my way or that I am worthy of any kind of recognition.  I am responding to close friends and family who are concerned about me and some of the health challenges that I have had over the past several months.  I am not writing because I think I am any more important or my problems are somehow more important than the challenges that we all face on a daily basis. But I and my family are constantly asked “How are you doing?”  This is a time-effective way to respond.
 
With that being said; since my last update, spelling and grammar aside, the reason for the long delay, was that things were going good.  I have felt strong and even shot my first even-par round of golf.  I have been able to walk nine holes.  I have had the problem of really low blood sugar while practicing or after a good work out.  This is something that I will have to adjust to as time goes on.
 
I now have three very good doctors that I see on a regular basis.  Each one asks me for a blood test before each visit.  One of my recent tests concerned Dr. Box, who is my transplant doctor.  He requested two tests which I have had before.  One was another liver biopsy and the other was a test where they probe my liver to test the blood flows and condition of the liver from the inside.
 
The results of that test were just received and the transplant team at the U of U had me on their agenda for their weekly meeting.  It seems that the pressure inside my liver is elevated and I have one of my bile ducts seemed to be slightly restricted.  They believe the reason for this could be long term rejection or a return of the sclerosing cholangitis which is what caused my liver failure the first time.  I was pretty bummed until they said, “So nothing to worry about right now." Don’t you love the way doctors talk?
 
Things were going good until last Tuesday.  It started with a sore in the roof of my mouth.  I didn’t think too much about it.  By Wednesday sores had spread inside my mouth and the left side of my face. I was in quite a bit of pain.  I went to my son in law, a dentist, who prescribed an antibiotic mouth wash.  After one day things got worse.  I went to his office for x-rays, which showed nothing.  I also called a good friend who is an oral surgeon.  He was out of town at the time.  I did get a medication that numbed my whole mouth but by then my jaw and spots on my head became very sore.
 
After taking time out during his vacation, he called and told me to go to the emergency room.  The ER doc there determined I had Shingles, which I thought was an old person’s ailment.  Turns out, I am an old person.  After some really, really good drugs for three days, things began to improve.  As of today, I think that I have turned the corner.
 
The problem with having your whole mouth numb is that you have no sense of taste and nothing sounds good to eat.  If you want to go on a crash diet and quickly lose eight pounds, get shingles.  My problem is that it took me about eight months to put those pounds on.  I know some of you are jealous, but I would think of another way to drop pounds if I were you.
 
Right now things are going good again.  As is times past, I am so grateful for your prayers and good wishes.  I am thinking I should be good for a few years.
 
Gratefully,
 
Mike
 

Monday, January 30, 2012

January 30, 2012

January 30, 2012

I have been reminded by a friend that I have not posted an update on my health and condition for quite some time. This is actually good news for me, because there has not been anything really newsworthy to report on. But it has been just before Christmas since my last note to you.

I have had about four weeks of giving myself insulin before each meal. In addition, I have been testing my blood sugar four or five times a day. It has been an adjustment, but I feel like I have some control of my sugar levels now. My appetite has returned and I am doing my best to eat normal meals. I have appreciated the greater energy that comes with more normal blood sugars.

I actually have been enjoying eating again. However, I have not been able to pick up any significant weight. I know everyone wishes they were in this boat, but believe me it is not all it’s cracked up to be. It might be my messed up head, but I kind of like being on the thin side. It’s the concentration camp look I don’t like very well. I have been going to the gym and I am getting some strength back. I feel like I am ready to take up golf again. I wonder if I will still have to give Scott four shots aside.

I have a positive feeling about the weeks and months to come. If I can keep things rolling I will be able to get back to somewhat of a normal existence. I really enjoyed the holiday season, as it gave me a chance to touch base with good friends and family. I am truly blessed.

Mike